The girl in the picture, taken in 2005, did not know she was going to have a facial disfigurement that people in the street would stop and stare at. She didn't know what it was like to feel like a monster and a freak. She was an average girl, worried about spots, greasy hair and what she ate. She didn't know what the future held, and she didn't care. She was happy. This girl can't be brought back to life, she's been through too much now, been in some very dark places deep within herself. But the 2007 Princesse is stronger, and happier, more appreciative and has a new sense of self. Young Princesse can't come back, but her health can...
As I said a while ago, I was to begin a new treatment for my condition, as things were only deteriorating. The drug, which is called Infliximab, is fairly new, and is not prescribed for my illness, however, my wonderful doctor managed to find an infliximab specialist who was willing to take the risk by treating me (and let’s face it, it was a huge risk).
Last Tuesday I arrived at the hospital and prepared myself for the six hour stay while I was attached to an IV, feeding my veins with this ‘magic potion’.
Frankly I was terrified. It’s a newly discovered drug, and not tested on people who have my condition. It can also cause cancer of the blood. And, by the time I arrived at the hospital, I had convinced myself I would take an allergic reaction and that I was going to die.
But I didn’t take an allergic reaction, and I saw a difference in the lesions only 24 hours after the infusion. Five days on, and I am a different person. Although my lesions are still here, the swelling is going down and the redness is paling.
But what makes me want to cry with joy is the fact that my nose, is no longer swollen and lumpy, misshaped or disfigured. I HAVE MY NOSE BACK!!!!!!!!!!!!!!!!
Fair enough it’s still pink and not normal colour but I have great camouflage make up for that. The main thing is my nose has taken on its natural shape again and I think I might die with happiness.
And the crazy thing is that I’ve only had one infusion! The next one is a week on Tuesday and I’m very impatient to get back to that hospital and be attached to the drip and watch as the magic potion does what it should.
The storm is almost over and I really feel like I am the luckiest girl on earth right now.
Sunday, August 05, 2007